Neurology on Wheels

An outreach of care. The way forward.

By Dr. Bindu Menon MD, DM, and Dr. Medha Menon, MBBS

Bindu Menon

Bindu Menon

As goes the epidemiological transition from communicable to non-communicable diseases (NCDs), India stands at the precipice of having to balance the burden of both. While managing communicable diseases like a wound that has not yet scabbed, the rising trends of NCDs like stroke, cardiovascular events, and cancers further predispose the population to infections, making them difficult to curb.

The rapid rise in cases of NCDs requires its own scrutiny and care. The seemingly sudden increase in cases is a result of efficient screening services as well as the culmination of a lifetime of unhealthy lifestyle habits. One in four Indians risk dying from an NCD before they reach the age of 701. Of the NCDs, neurological disorders, such as stroke, epilepsy and dementia, are the major contributors to the global burden of disease. Often presenting with relatively subtler signs as compared to cardiovascular events, they tend to go unaccounted for, making it even more prudent for its detection and treatment. Of the cases coming under our radar, the prevalence of neurological disorders in India, which is more in rural areas, ranges from 967-4,070 with a mean of 2,394 patients for a population of one million2.

Stroke is a major medical emergency that causes lifelong repercussions to a patient without timely medical care. The current incidence of stroke in India is much higher than western industrialized countries3.

India’s population has been set to overtake China’s by the end of April 2023, reaching 1,425,775,8504 with an overwhelming majority of 65% residing in rural India5.

Despite India having achieved the WHO-recommended doctor-patient ratio of one per thousand6, the lack of medical practice in rural areas shrouds their medical needs. With just over 2,500 neurologists, the reality is that a single neurologist caters to the medical needs of more than five million population. This ridiculous neurologist-patient ratio makes it nearly impossible to assure delivery of timely medical services to all. With increased medical facilities concentrating in cities, the urban-rural divide further widens.

Our job as service providers makes it our responsibility to look at the various factors that contribute to the meager medical attention received in rural areas. A deep dive into the conversations with the locals brings to light how awry education, economic constraints, and misguided prioritization contribute to this. Often the locals say, “I don’t have high blood pressure, I feel absolutely fine,” in response to showing them their chronically elevated levels, sometimes touching 200/120, or “I stopped my medications because I haven’t had a seizure in a while,” when asked why they were not compliant to medication, and sometimes, “I thought the paralysis of my face and hands were due to high sugars,” when asked why they didn’t go to the hospital for treatment. However, most times, they do have genuine reasons for not availing medical services. More often than not, their nearest hospitals are almost 100 kilometers away, which increases the time lost to treat any emergency as well as cost of travel which the family cannot bear. But of all, the most important factor would still be the lack of awareness about the disease at hand. This lack of awareness includes not knowing the symptoms of the disease, the importance of timely diagnosis and treatment, maintenance of drug compliance, complications of the disease, and how all of this will affect their livelihood. It is important because trying to eliminate this root cause empowers the people to identify their problem and take necessary steps as well as contribute to the decision making of their treatment. Once they make their first step to availing treatment, we can meet halfway to provide them with medical services.

We now see that it is not just the lack of medical services that increases disease burden in rural areas. Thus, a combined approach is deemed most useful to tackle the problem at hand. We must address the lack of awareness, the monetary constraints as well as lack of on-site medical services to effectively curb the problem.

For this reason, with the goal of raising awareness as well as providing free medical services in the resource-poor and remote rural sector, a novel project “Neurology on Wheels,” a first-time project by the Dr. Bindu Menon Foundation was started in Nellore, Andhra Pradesh, India. This project identifies a village from the 46 mandals by random selection. The team of the foundation then visits the village after the village head has been informed about the camp in advance. The village sarpanch is also asked to prime the ASHA/ Anganwadi workers/ANM (local women trained to act as health educators and promoters in their communities) for efficient coordination.

The motto followed is, “We reach, we teach, and we treat.” Upon reaching the village, an awareness program is held for all the people attending the camp. The talk is tailored to risk factors of stroke and recognition of its symptoms, epilepsy and its prevention, and the role of regular compliance of medicines. This way the practice of a holistic approach to healthy living is encouraged with the need to focus on dietary, exercise, and drug compliance.

Later, a free medical camp is held where screening and detection of hypertension, diabetes, epilepsy, and stroke is done, at the end of which the patients are distributed medicines. This way, new NCDs are detected, and early intervention is done to derail the original trajectory of a dangerous disease to a more controlled one. With the risk factors evaluation, the public is counseled regarding their stroke risk according to the stroke risk card. Furthermore, drug naïve stroke and epilepsy patients who are below the poverty line are incorporated into the foundation for their free medicines. This way, we can inch forward slowly to closing the treatment gap.

Neurology on Wheels is a project with potential to extrapolate to larger scales. Our team is limited, but with proper resources and manpower, it can provide as a mighty tool to bridge the urban-rural divide prevailing in India.

This project has covered 44 villages and has detected more than 416 new cases of hypertension, 133 of diabetes, 109 of untreated epilepsy, and 143 of stroke, which might not seem like a huge chunk off the actual burden of disease. However, humanizing these numbers shows us with extreme perspicuity how this project has imparted the much-needed help and treatment services to these patients who would have otherwise contributed to the ever-growing treatment gap of NCDs in rural India. •

Dr. Bindu Menon MD, DM, and Dr. Medha Menon, MBBS, are with the Dr. Bindu Menon Foundation in Nellore, Andhra Pradesh, India.

References:

  1. https://www.wbhealth.gov.in/NCD/
  2. Gourie-Devi M. Epidemiology of neurological disorders in India: review of background, prevalence and incidence of epilepsy, stroke, Parkinson’s disease and tremors. Neurol India. 2014 Nov-Dec;62(6):588-98. doi: 10.4103/0028-3886.149365. Erratum in: Neurol India. 2016 Sep-Oct;64(5):1110-1. PMID: 25591669.
  3. Kamalakannan S, Gudlavalleti ASV, Gudlavalleti VSM, Goenka S, Kuper H. Incidence & prevalence of stroke in India: A systematic review. Indian J Med Res. 2017 Aug;146(2):175-185. doi: 10.4103/ijmr.IJMR_516_15. PMID: 29265018; PMCID: PMC5761027.
  4. India to overtake China as world’s most populous country in April 2023, United Nations projects
  5. https://data.worldbank.org/indicator/SP.RUR.TOTL.ZS?locations=IN
  6. Kumar R, Pal R. India achieves WHO recommended doctor population ratio: A call for paradigm shift in public health discourse! J Family Med Prim Care. 2018 Sep-Oct;7(5):841-844. doi: 10.4103/jfmpc.jfmpc_218_18. PMID: 30598921; PMCID: PMC6259525.

Neuroinfectious Disease Update

Update on several noteworthy neuroinfectious disease issues, including arboviruse as well as COVID-19 exposure in-utero.

By B. Jeanne Billioux, MD, and Avindra Nath, MD

The WHO has recently released reports denoting the expansion of cases of dengue and chikungunya beyond historical areas of transmission in the Americas, as well as warnings for increased expansion of transmission in areas of Europe that were previously unaffected (https://www.who.int/emergencies/disease-outbreak-news/item/2023-DON448; https://www.bloomberg.com/news/articles/2023-04-05/europe-at-risk-of-dengue-and-zika-summer-outbreaks-who-warns#xj4y7vzkg).  Climate change may contribute to broadening habitat for certain viral-spreading arthropods, including the Aedes aegypti mosquitoes that harbor dengue, chikungunya, and zika viruses.

Dengue has been on the rise this season, with many South American countries including Colombia, Brazil, and Argentina, as well as Asian countries, such as the Philippines, recording increased caseloads compared to prior seasons (outbreaknewstoday.com). The U.S. has also recorded several cases in Southern Florida, most of them related to travel, as well as autochthonous transmission in Maricopa County in Arizona this year (https://www.floridahealth.gov/diseases-and-conditions/mosquito-borne-diseases/_documents/2023-week14-arbovirus-surveillance-report.pdf; https://www.cdc.gov/mmwr/volumes/72/wr/mm7211a5.htm). 

Dengue may present broadly, from asymptomatic cases to hemorrhagic fever; most typically, in symptomatic cases, it causes flu-like symptoms. Neurologic complications occur uncommonly, and include encephalopathy from multiorgan involvement, encephalitis, PRES, stroke (both ischemic and hemorrhagic), and immune-mediated syndromes such as transverse myelitis, Guillain-Barre syndrome, acute disseminated encephalomyelitis, myositis, mononeuropathies, and cyberelites. Some patients may develop hypokalemic paralysis (Trivedi 2022). No known treatments for Dengue exist, but several vaccines are in clinical trials or in various stages of gaining approval, including the recent approval in Brazil https://www.thepharmaletter.com/article/takeda-gains-approval-in-brazil-for-qdenga?print=1.

Known Neurologic Complications of Dengue and Chikungunya Chikungunya cases have also been increasing in early 2023, including a surge of cases in Paraguay and Brazil, with Brazil recording over twice as many cases compared to last year (http://outbreaknewstoday.com/author/news-desk/). Although the disease commonly causes fever, fatigue, malaise, and arthralgias (sometimes severe), over 200 cases of suspected meningoencephalitis have been reported due to chikungunya virus in Paraguay during this current outbreak, a rare presentation, (https://www.cidrap.umn.edu/chikungunya/paho-warns-rising-chikungunya-cases-americas-some-fatal) which needs to be closely watched since it could represent an evolution in viral tropism. Other known neurologic complications of Chikungunya include encephalopathy, encephalitis, myelopathy, and peripheral neuropathies, including Guillain-Barre syndrome (Brizzi 2017).

Of note, efforts to reduce transmission of dengue, chikungunya, and the neurovirulent zika virus by using Wolbachia bacteria infection in Aedes aegypti mosquitos have been underway in a number of different areas with varying levels of success. Wolbachia infection of these mosquitos essentially blocks viral replication of dengue, chikungunya, and zika in the mosquito, leading to decreased transmission of these viruses. Recent reports by the World Mosquito Program have noted decreased dengue spread in Java, Indonesia, and the Aburra Valley in Colombia, among other places, where the Wolbachia-infected mosquitos have been released (https://www.worldmosquitoprogram.org/en/learn/scientific-publications).

In COVID-19 related news, a recent case series has reported two neonates born with brain abnormalities thought to be related to in-utero exposure to SARS-CoV2. Both babies were born to mothers who had contracted SARS-CoV-2 in their second trimesters (one with re-infection during the third trimester). Both babies were SARS-CoV-2 negative at birth, but had microcephaly, seizures starting on the day of delivery, and developmental delay over time. Both infants had SARS-CoV-2 antibodies and elevated inflammatory markers, and the placenta from each case also displayed SARS-CoV-2 proteins, increased inflammatory markers, as well as evidence of decreased fetal perfusion. One infant died at 13 months of life; on autopsy, the infant was found to have white matter loss, gliosis, vacuolization, as well as evidence of SARS-CoV-2 viral proteins by immunofluorescence throughout the brain, indicating viral infection. The authors note that these two cases are extremely rare, but indicate that in-utero exposure to SARS-CoV-2 in the second trimester has the potential to cause neurodevelopmental sequelae (Benny 2023).  •

References:

  1. Trivedi S, Chakravarty A. Neurological Complications of Dengue Fever. Curr Neurol Neurosci Rep. 2022 Aug;22(8):515-529. doi: 10.1007/s11910-022-01213-7. Epub 2022 Jun 21. PMID: 35727463; PMCID: PMC9210046.
  2. Brizzi K. Neurologic Manifestation of Chikungunya Virus. Curr Infect Dis Rep. 2017 Feb;19(2):6. doi: 10.1007/s11908-017-0561-1. PMID: 28233188.
  3. Benny M, Bandstra ES, Saad AG, Lopez-Alberola R, Saigal G, Paidas MJ, Jayakumar AR, Duara S. Maternal SARS-CoV-2, Placental Changes and Brain Injury in 2 Neonates. Pediatrics. 2023 Apr 6:e2022058271. doi: 10.1542/peds.2022-058271. https://publications.aap.org/pediatrics/article/doi/10.1542/peds.2022-058271/191033/Maternal-SARS-CoV-2-Placental-Changes-and-Brain?autologincheck=redirected

My Experience With the EEGonline Distance Learning Program

By Dr. Rabwa Fadol

Many thanks to Dr. Lawrence Tucker and his team for organizing the online 2022 EEG course and to the World Federation of Neurology (WFN) for sponsoring me as a junior neurologist for such an outstanding course. It is so valuable, informative, and well organized.

I joined this course while I was in the last year of my MD neurology training in Sudan. My target in the course was to expand my knowledge about the basics of the EEG, its implications in diagnosing different neurological disorders as well as sleep disorders, as I worked in a sleep lab for a couple of years.

The course was well structured from the basic concepts up to the reporting of the EEG.

The display of information by different ways, such as lectures, videos, audios, interactive discussions (epochs) with nice comments from the EEG experts, and frequent assessments by end-of-module quizzes made the subject easier to understand and interesting. The time management for the different modules was excellent (suitable and flexible) enabling us to follow smoothly.

Thanks to God that I passed both the EEG exam as well as my MD neurology exam at the same time. And I hope to implement this knowledge in my practice and to teach the junior colleagues in order to improve our health care system.

I hope the WFN will offer more opportunities to more candidates in our country and other sub-Saharan countries to attend this course and other neurological studies to help us improve our care to the patients. •

Dr. Rabwa Fadol is a Sudanese neurologist.

2023 WFN Elections

Report of the WFN Nominations Committee

One Treasurer and one Elected Trustee are to be elected at the Council of Delegates (CoD) Annual General Meeting (AGM) in October during the World Congress of Neurology in Montreal. The nominating committee of the World Federation of Neurology (WFN) now recommends to the membership those listed here as candidates in accordance with the Federation’s Memorandum and Articles of Association.

Recommended candidates

(Click on each name for their candidate statement.)

Treasurer to take office Jan. 1, 2024

  1. Prof. Marianne de Visser (The Netherlands)
  2. Prof. Barbara Tettenborn (Switzerland)

Elected Trustee to take office immediately after the COD Meeting

  1. Dr. Lawrence Tucker (South Africa)
  2. Dr. Mohammed Wasay (Pakistan)
  3. Dr. Tissa Wijeratne (Sri Lanka / Australia)

The deadline for submitting candidates for nomination was April 3, 2023. Nominations made after this deadline are possible. To nominate another individual (who must be a member of a WFN member society),

  • Obtain the supporting signatures of five or more authorized WFN delegates.
  • Submit the name(s) of the individual(s) in question to the Secretary General, along with a CV and a letter of the candidates agreement to stand.
  • Send to WFN headquarters at info@wfneurology.org 30 days prior to the start of electronic voting on Sept. 22, 2023.

Voting Timetable

Voting will take place by electronic voting (remote online ballot). This method of voting enables all member societies to vote in the elections, regardless of whether they are attending the CoD meeting.

Voting will be carried out in advance of the WFN AGM of the CoD. The election results will be announced at the CoD meeting.

• Registration to attend the WFN AGM CoD Meeting and to vote will open Sept. 1, 2023.

• Voting will open for two weeks between Friday, Sept. 22, 2023, @ 12 p.m. UTC and Sunday, Oct. 8, 2023, @ 12 p.m. UTC.

The method of voting and timetable provides voters ample time and opportunity to register, and equity when making their vote without adverse conditions such as differences in time zones, or stresses due to travel restrictions that may impact their sound decision-making.

For more details on the method of voting, please contact info@wfneurology.org.

 

Candidate Statement for Treasurer: Marianne de Visser

My name is Marianne de Visser. I am an adult neurologist and (emeritus) Professor of Neuromuscular Diseases at the University of Amsterdam, the Netherlands.

Marianne de Visser

Marianne de Visser

I would like to apply for the position of treasurer.

I have been committed to the good cause of the WFN for several decades. I have served under inspiring presidents. First, as a delegate on behalf of the Netherlands Society of Neurology, subsequently as an elected trustee under the late Presidents Jun Kimura and Johan Aarli. Under Bill Carroll’s presidency, I was chair of the Nominating Committee, and most recently, co-opted trustee. President Wolfgang Grisold appointed me as chair of the Membership Committee and chair of the Committee for Diversity, Equity, and Inclusion.

I have witnessed the growth of WFN. The increasing membership, but also the expanding role of the WFN in several impactful initiatives worldwide, are clear signs of leadership.

The close collaboration with the WHO has borne fruit for neurology.

One example is the Neurology Atlas, showing the country resources for neurological disorders. The data highlight that while the burden of neurological disorders is disproportionately high in low- and middle-income countries, health care services and resources are often scarce. The main project presently is the implementation of the intersectoral action plan for epilepsy and other neurological disorders, IGAP, which was approved at the World Health Assembly in May 2022, and has a time of 10 years for the duration of the program. It focuses on advocacy, treatment, prevention, research, innovation, and public health awareness, and is meant to implement neurology in all countries of the world.

The WFN puts many efforts in fulfilling its mission: “Fostering quality neurology and brain health worldwide.” One example is by organizing the World Brain Day, together with the six regional societies. World Brain Day is an extremely successful recurring event on July 22. This year, World Brain Day focuses on Brain Health and Disability: Leave No One Behind, conveying five important messages: Awareness, Prevention, Advocacy, Education, and Access.

Several WFN Programs focus on education, in particular aimed at residents and early career neurologists. This year, we celebrate the 10-year anniversary of WFN training centers, which provide one-year fellowships but also four-year residency programs. Another great success is the department visit program which enables an exchange of experiences and practices and also creates an opportunity to create an academic network for future cooperation.

At the beginning of his term, President Grisold stated that the WFN will need to take diversity, equity, and inclusion into consideration in its strategy, that the needs of early career neurologists require specific attention and action, and a platform for patient organizations should be installed in the WFN infrastructure. I embrace those initiatives, and I am fully committed to serve the WFN as treasurer to make those initiatives to a success in close collaboration with the trustees and the indispensable colleagues from the Head Office. •

Candidate Statement for Treasurer: Barbara Tettenborn

My name is Barbara Tettenborn. I am professor of neurology in Switzerland and Germany with both citizenships. I was born in Halle/Saale in East Germany, spent my later childhood and youth in West Berlin, studied medicine in Germany, England, and Ireland, and passed my neurological residency at the University Hospital in Mainz in Germany (Head of Department Prof. H.C. Hopf) followed by a stroke fellowship with Prof. L.R. Caplan in Boston in the United States.

Barbara Tettenborn

Barbara Tettenborn

I am a general neurologist with special interests in epilepsy, stroke, sports neurology, and brain health. After more than five years as vice chair of the department of neurology in Mainz, I was elected as head of the department of neurology in St. Gallen, Switzerland, in October 1999, and kept this position until my retirement in March 2023. I am still affiliated with the Johannes Gutenberg University in Mainz as professor of neurology continuing to give lectures and teaching courses on a regular basis. I am a member of the European Academy of Neurology (EAN) as editor-in-chief of e-Learning. Together with a great team from the EAN and the editorial board, we built up the new e-Learning platform in 2021/2022, which was launched at the EAN annual meeting in Vienna last summer.

Regarding my experience in administrative boards:

  • I was member of the board of the Swiss Neurological Society for more than eight years and treasurer of the Swiss Federation of Clinical Neuro-Societies for more than four years until the end of 2022.
  • I served as a member of the administrative board at the hospital in St. Gallen for four years.
  • I am president of the Swiss League against Epilepsy and president of the organization Women in Neurology (WIN) Switzerland.
  • I am vice president of the scientific board of highly specialized medicine in Switzerland. My special research interests are epilepsy in the elderly, seizures due to vascular lesions, new antiepileptic drugs, vertebrobasilar ischemia, gender aspects in neurology, and sports neurology.
  • I am author and co-author of numerous publications and editor and co-editor of several textbooks of neurology, including “Paroxysmal Disorders in Neurology”’ and “Sport as Prevention and Therapy of Neurological and Psychiatric Disorders.”

Neurology is not only my profession, but also my first and most favorite hobby, my second hobby being sports, especially triathlon and mountaineering. I like to cooperate and communicate with people and to encourage especially the next generation. Being recently retired from my position as head of department gives me the time and energy to take on new tasks. I have quite a lot of experience in administrative positions and political communication, including the position of treasurer of a large national society for several years.

It would be a great honor for me to serve the World Federation of Neurology as treasurer, and I promise to put all my energy, enthusiasm, time, and effort into this position in order to help to give neurology as much worldwide visibility and impact as possible.  •

Candidate Statement for elected Trustee: Lawrence Tucker

It is an immense honor to be nominated for the position of WFN trustee.

Lawrence Tucker

Lawrence Tucker

After completing a laboratory-based, neuroscience PhD in Cambridge as a young doctor in 1993, I returned to train as a neurologist in sub-Saharan Africa where neurologists to general population average one per five million. I now head of neurology at Groote Schuur Hospital and the University of Cape Town’s Neuroscience Institute. I am president of the College of Neurologists of South Africa and past president of the Neurological Association of South Africa. I also sit on the boards of various other national, neurological, professional, and academic bodies

I am a general neurologist with an interest in epilepsy, but my passions lie in the advancement of neurological education, training, clinical practice, and advocacy, especially in resource constrained environments. Little surprise, then, that working with the WFN over the past decade has been a privilege and source of great personal fulfilment. I have been a WFN delegate for almost a decade and served on many WFN committees (core education, grants, public awareness and advocacy, RTC, e-Learning, 2023 WCN, and finance). In these and other roles, it has been a pleasure and honor to interact with esteemed WFN colleagues, including four presidents, trustees, and many other office bearers.

I am grateful to the WFN for providing me with opportunities to pursue its mission. For example, using WFN seed sponsorship, our Cape Town group developed an intensive, annual, 6-month, distance learning program for electroencephalography training, which has enrolled well over 1,000 neurology residents and neurologists, predominantly from lower and middle income countries during the past seven years. However, I regard working closely with the WFN and African colleagues to establish the African Academy of Neurology (AFAN) in Dakar (2017), and setting up the Cape Town WFN Regional Training Center (2019) as two particularly significant personal achievements.   

Since its inception, I have been treasurer, vice president and, most recently, president-elect of AFAN, which is now well-established and collaborates with the WFN and other international, regional, and national bodies globally to promote neurology in Africa. Among other activities, AFAN runs biennial congresses and, jointly with the WFN, virtual annual e-Learning days and advocacy programmes.

The Cape Town WFN RTC, which I head, is the only Anglophone WFN RTC in the southern hemisphere. It offers career neurology training, as well as clinical fellowships (in stroke, epilepsy, neuroinfection, neuromuscular disorders, and clinical neurophysiology) for neurologists practicing in lower and middle income countries in sub-Saharan Africa.

If elected as trustee, I will continue to work with WFN colleagues toward our organization’s goal of quality neurology for all. This will involve strengthening established collaborations with national, regional, and international organizations, including the WHO; expanding the WFN’s existing and already successful educational, e-Learning, visiting fellowship and RTC programs; and supporting new, inclusive initiatives between the global north and south to promote the WFN’s mission in Africa, South and Central America, Asia, Oceania, and all regions in the world where neurologists and neurological expertise remain scarce. •

Candidate Statement for Elected Trustee: Mohammad Wasay

I am currently Alicharan Endowed Professor of Neurology at Aga Khan University Karachi, past president of the Pakistan Society of Neurology and Pakistan Stroke Society, president of the Neurology Awareness and Research Foundation and distinguished scholar of COMSTECH (OIC). I have also served as a director of World Stroke Organization (WSO) and am currently serving as fellow of Pakistan Academy of Sciences and Secretary of the Environmental Neurology Speciality Group (ENSG) and member global policy committee for WSO. I was recently elected as fellow of the World Academy of Sciences (TWAS).

Mohammad Wasay

Mohammad Wasay

I have worked with WFN for more than a decade as an active neurology advocate and researcher from South Asia. I was trained at Palatucci Forum, and then received Advocacy Leader of the Year Award by American Academy of Neurology for my global advocacy contributions. I served as chair of the World Federation of Neurology (WFN) Advocacy Committee for four years. This committee was instrumental in starting and organizing World Brain Day activities and promoting brain health across the globe. We organized many advocacy workshops and teaching courses during the Asian Oceanian Association of Neurology conferences, Asian Pacific Stroke Conference, and World Congress of Neurology.

I established a network of neurology training and research in Kenya, Tanzania, Afghanistan, and Central Asia. We established the Asian stroke network with more than 20 centers in 10 Asian countries. Currently, I am leading an initiative to establish the OIC Neurology Academy to promote neurological acre and training in developing Islamic countries. Recently, I have been appointed as chair, specialty groups committee by the WFN president. As secretary of Environmental Neurology Specialty Group (ENSRG), I have organized many educational and awareness activities related to environment and neurological diseases.

I have trained more than 50 neurologists under my supervision. I have published more than 238 papers in peer-reviewed medical journals with impressive publications metrics (IF: 676; citations=6700, H-index 39 and I10 index 95). I have received many awards, including the Teachers Recognition Award by American Academy of Neurology, Gold Medal by Pakistan Academy of Medical Sciences, Gold Medal by Pakistan Academy of Sciences and Research productivity awards by Pakistan Council of Science and Technology. I have received 29 research and training grants (intramural and extra mural) as PI and co-PI. I have been an invited speaker at more than 130 conferences in 73 countries.

The growing burden of neurological diseases in the world has established WFN as an important stakeholder in global health. WHO has recently approved an intersectoral action plan for promotion of neurological care, training, and advocacy across globe. We plan to promote brain health as a top agenda for WHO and United Nations. There is an inequity in neurology training and care across the globe. South Asia, Central Asia, and Africa should be a center point for our future interventions. As an expert in stroke from south Asia, active role in the World Federation of Neurology and World Stroke Organization, I could be a useful member of this global task force. •

Candidate Statement for Elected Trustee: Prof. Tissa Wijeratne

What an exciting time to be in the WFN. It is an incredible honor to have been nominated for the trustee position in the upcoming election this year. Brain health is in peril globally. One in three of us has a brain disorder. Every one of us will experience disability (temporary or permanent) during our lifetime. The potential for prevention is enormous. Brain disorders are the leading cause of disability and the second leading cause of death globally. Two-thirds of these occur in low- to middle-income countries. Different regions of high-income countries demonstrate vast disparities in awareness, education, access to care, prevention, and rehabilitation. I have seen this imbalance in care firsthand during my youth in rural Sri Lanka, followed by culturally and linguistically diverse communities representing 166 nations in Western suburbs in Melbourne, Australia.

Tissa Wijeratne

Tissa Wijeratne

I believe WFN can build on the successes of the last few decades, capitalize on IGAP, and advocate more for quality neurology and better brain health by improving local engagement and activities.

If elected, I will seek to enhance the inclusiveness and constant collaboration already at our society’s heart. We shall continue to work hard to support movers and shakers in brain health worldwide — not only neurologists, academics, and industry, but also the billions of patients and families experiencing the effects of brain disorders.

Advocacy and supporting local advocates will be a crucial component of my global vision for quality neurology and better brain health. We will continue to assist national societies, health ministers and ministries, aiming to deliver the IGAP for all neurological disorders in all regions during the next decade. Educational programs, grants, symposia, CME, traveling fellowships, accreditation, and postgraduate training programs will all be added to, enhanced or, in some cases, newly developed to help address this need globally. We are already doing a lot, but we can and will do more. Our many activities will continue to bring neurologists worldwide together, ensuring everyone’s voice is heard. Committee representation, additional scientific activities, and other advocacy campaigns shall be the tools we use to achieve this goal.

The WFN needs hard-working men and women who can dedicate themselves to improving brain health worldwide. To cohesively solve the issues facing neurologists across the globe, we can listen to, discuss, and assimilate the ideas of many. I will bring these qualities to our leadership group.

As you know, I have already represented the global neurology community in WFN activities for nearly two decades. I am ideally poised to take up the responsibilities of a trustee, as I bring experience from both sides of the world — from rural Sri Lanka to Australia and beyond.

The World Brain Day campaign has already reached out to over a billion people since its genesis in 2014. Yet, there is more ground to cover, but our goals are achievable. With our already talented team, we can work together on this critically important task now.

See more about me on my website. I am on WhatsApp at +61430048730 if you need to clarify anything with me directly. •

WFN Activities Update

By Wolfgang Grisold

Wolfgang Grisold

Wolfgang Grisold

Welcome to World Neurology. We are glad to be able to share WFN proceedings in this issue. Unfortunately, the worldwide situation in regard to armed conflicts has not improved. In addition, we witnessed the earthquake in the region of Turkey and Syria, and we all want to express our sympathies. We are also aware of the critique that we omit many other disasters that occur in our member societies, and I apologize for not mentioning all of them.

To continue with the bad news, our past president, Prof. Johan Aarli, died March 26, 2023. His merits for the WFN were enormous in regard to the relations with the WHO, the Africa initiative, and the history book on the WFN. His funeral was April 4, 2023, and was attended by past-President Raad Shakir and myself. (Please also see the obituaries and tributes in this issue of WFN).

The London office is keeping busy with our agendas. In addition to Laura, Jade, and Carlos, we have help from Yannik and, increasingly Chiu, with our expanding activities and website as well as social media. Kimberly Karlshoej, who served as the strategic and program director and has added much vigor and great ideas for the WFN, had to resign for personal reasons. We thank her for all of her work. We will implement a new structure of a voluntary project-based assistant, called an “internship,” which will help with our communication with the global societies such as the WHO and UN ECOSOC under the supervision of Alla Guekht and the London office.

The cooperations with the WHO are invaluable, and the main project presently is the further implementation of the intersectoral action plan for epilepsy and other neurological disorders (IGAP). As you may recall, the IGAP was approved at the World Health Assembly (WHA) in Geneva in May 2022, and has a time of 10 years for the duration of the program. It focuses on advocacy, treatment, prevention, research and innovation, and public health awareness, and is meant to implement neurology in all countries of the world and also empower the existing neurological structures. The WHO has outlined the important indicators and is currently working on the further development of the toolkit for optimal use. The WFN is proud to say that it is able to support the WHO in this important task as a donor, and we will be involved in the further process of advancing the IGAP. Our recent article on IGAP can be openly accessed here: https://www.jns-journal.com/article/S0022-510X(23)00105-3/fulltext

One important aspect of our activities is brain health. Despite several definitions, interests, and a number of stakeholders, the concept of brain health is important, and also closely connected with the IGAP. I want to remind readers that the next WFN World Brain Day (WBD) bears the title “Brain Health and Disability,” and thus indicates that the WFN is following the route to support the brain health concept, which was initiated in 2020.  Although brain health is a universal concept, it needs to be targeted from many perspectives. The function of a healthy brain in all developmental stages from the prenatal period into old age, as well as the close connection of brain function with mental disorders, are pragmatic directions for neurologists. These need to be supported by many initiatives as delineated in the IGAP and by the WHO paper on brain health.

The 2023 topic of “Brain Health and Disability” also aligns with initiatives of the WHO.  We are developing the WBD program jointly with the six WFN regions and have also invited the World Federation of Neurorehabilitation as a partner. This worldwide society has its focus on neurorehabilitation and promotes development and research.

The progress of the WBD toolkits and activities can be found on the WFN website, and here for updates. The WBD is chaired by Tissa Wijnerate, and David Dodick. We are again supported by Yakkety Yak as a professional public relations agency.

Education: From our numerous educational activities, we are glad to report that another four-year neurology trainee has started training in Dakar. The department visits will be extended to Asia for Asians. This year’s African educational day’s topic will be “neuropathies.” There will also be a joint educational day on headache jointly with IHS GPAC, and we are on the way to establish an Asian educational day jointly with AOAN, which will have stroke in Asia as a topic.

The concept of the World Federation of Neurology Teaching Centers (WFN TCs) was first introduced in 2013, and it is an excellent occasion to celebrate 10 years at the World Congress of Neurology (WCN) in Montreal.

The first TC in Africa was established in Rabat, Morocco, with significant support from the Moroccan society, followed by TCs in Cairo, and Dakar. Another TC was opened in Mexico City for Latin America, and followed by Cape Town. The intention now is the establishment of a WFN TC in the Asian region.

The concept of the teaching centers is to create centers of excellence and also to empower local teaching. Starting with one-year general training, the concept has dynamically grown and has a diversification in fellowships and full four-year training.

We are all excited and looking forward to the WCN in Montreal, organized jointly with the Canadian Neurological Society (CNS). The congress will take place Oct. 15-19 in Montreal, Canada. The WCN will feature plenary lectures, topics, free presentations, debates, poster sessions, and an attractive teaching course program. The WFN has increased the outreach to other societies and global institutions, and we expect several joint sessions. As new items, we will have a patient platform, a patient day, debates, and several smaller events allowing for more direct contact to our speakers.

The WFN sent out three surveys to member societies and delegates: one on rare diseases, one on education for young neurologists, and one on the awareness of IGAP.  Unfortunately, the questionnaire on IGAP received least attention by our membership, and we would like to remind the members on the importance of IGAP as a true joint global project with the WHO.

The Council of Delegates (COD) meeting this year will be at the Montreal Congress, and we hope that many of the delegates will be able to come in person. The COD will also be hybrid due to travel issues, finances, or other reasons some delegates may not be able to attend in person. There will be two elections, one for the Treasurer (to follow Richard Stark), and one for the position of an elected trustee (to follow Morris Freedman). Also, this year’s election will be electronic, and details and instructions will be sent out in the near future.

All in all, we have an exciting year ahead of us, and we hope to be able to continue with this pace. We look forward to the WCN in Montreal. •