Multiple Sclerosis Surveys, Research, and Neurology News

The activities of the International Danube Neurology Symposium for Neurological Sciences and continuing education.

By Prof. László Vécsei

László Vécsei

The Symposium for Multiple Sclerosis (SMS), under the auspices of the International Danube Neurology Symposium for Neurological Sciences, has organized an international survey related to the Multiple Sclerosis (MS) Registry in different countries. It includes approximately 107 million people.

The findings from the international data have been published in the January 2023 edition of Multiple Sclerosis and Related Disorders. Furthermore, the Hungarian data is available in PLoS One. (See the abstract “Real-World Operation of Multiple Sclerosis Centers in Central-Eastern European Countries Covering 107 Million Inhabitants.

We are currently working on two more MS surveys about neuroimaging and special molecular biomarkers in the cerebrospinal fluid.

In the future, we plan to organize similar research surveys related to other neurological disorders, such as migraine and extrapyramidal diseases.

In recent years, we have established the Danube Neuroscience Research Laboratory network. Under its auspices, we focus on the pathomechanisms of neurological disorders in in vitro experiments, animal research, and clinical studies. In doing so, we aim to create a collaboration between different research activities.

We also publish the Danube Neurology Newsletter. It contains summaries of the present and future activities of the Danube Symposium, important news (for example WFN news, international neurology news, and national neurological activities), and reports or advertisements about international congresses. •


Prof. László Vécsei is general secretary of the International Danube Neurology Association of Central and East Europe, and head of the Neuroscience Research Group in the department of neurology at the University of Szeged Faculty of Medicine in Szeged, Hungary.

Expanding IGAP in Latin America

IGAP Santo Domingo.

By Prof. Renato Verdugo and Prof. Marco T. Medina

The Intersectional Global Action Plan (IGAP) Latin American workshop took place June 13, 2024, in Santo Domingo, Dominican Republic. IGAP is a worldwide plan to combat neurological diseases through 2031. It was launched by the WHO in 2022.

The event in Santo Domingo was organized by the Chilean League Against Epilepsy and the Autonomous University of Honduras, with the support of the Pan-American Health Organization (PAHO). The meeting was directed by Profs. Carlos Acevedo and Keryma Acevedo from Chile and Prof. Marco Tulio Medina from Honduras. Dr. Carmen Martinez-Viciana attended on behalf of PAHO.

(Left to right) Profs. Fernando Cendes, Renato Verdugo, and Marco Tulio Medina.

The World Federation of Neurology (WFN) was present through the participation of the president of the Pan-American Federation of Neurological Societies (PAFNS) and the regional division of the WFN for Latin America and Caribe Prof. Renato Verdugo of Chile, PAFNS Past President Prof. Marco Tulio Medina, and PAFNS Vice President Prof. Fernando Cendes of Brazil.

The meeting was successful regarding attendance and the relevance of the discussion. The overall theme was “IGAP: Challenges for its Implementation in Latin America.” Several topics were discussed, including:

  • Knowing IGAP, its scope, implications, relevance, and indicators
  • Identifying priorities and regional leaderships
  • Promoting regional development, sharing successful local strategies, and exchanging ideas to promote IGAP in the Latin American region
  • Generating actions and technical visions that may be implemented to support the region locally
  • Generating an epilepsy work model that includes stakeholders in Latin America

Working in small groups.

Prof. Verdugo gave a talk describing some of the most prevalent and growing neurological disorders in Latin America, with a focus on stroke and dementia. After a general conference, the participants were divided into groups that discussed the different subjects and presented their conclusions.

Ultimately, the meeting drew attention to the need to establish a Latin American regional IGAP group between the WHO/PAHO, regional WHO Collaborating Centers, the International Bureau of Epilepsy, and PAFNS/EFN. •


Prof. Renato Verdugo is president of the Pan-American Federation of Neurological Societies (PAFNS) and Prof. Marco Tulio Medina is past president of PAFNS and former co-opted trustee of the WFN.

Reports of Attendance at the AFAN and ASN Congresses

Both of this issue’s Junior Traveling Fellowship recipients attended the Fourth Congress of the African Academy of Neurology (AFAN), held in conjunction with the Fifth Congress of the Association Senegalese of Neurology (ASN), July 11-17, in Dakar, Senegal. Each brings their own perspective on what they saw and did during the meeting.

Movement Disorders Society course on Day 1.

Mahamadou Kotioumbe

My participation in the joint congress was made possible by the WFN Junior Traveling Fellowships Grant awarded by the World Federation of Neurology (WFN).

The congress included the Movement Disorders Society (MDS) course, the main congress sessions, and the Teaching Courses.

MDS Course

The MDS course covered a range of topics in movement disorders, including:

  • Parkinson’s disease: Advances in diagnosis, including genetic aspects, treatment, and management
  • Management of atypical Parkinsonian syndromes
  • Hyperkinetic movement disorders: Diagnosis, management, and treatment
  • Treatable movement disorders

There were a number of take-home messages from the course, including the importance of early and accurate diagnosis in improving patient outcomes. We also learned about novel therapeutic strategies, including deep brain stimulation and pharmacological interventions. And there was much said about the role of genetics in movement disorders and the potential for personalized medicine.

(Left to right) Prof. Wolfgang Grisold, Mahamadou Kotioumbe, and Prof. Riadh Gouider.

Congress Sessions

The main congress sessions featured plenary lectures, oral presentations, and poster sessions on various neurological conditions. The key topics included sleep disorders, stroke, and headaches. Epilepsy, neuroinfectious diseases, and neuro-environment diseases were also covered. I also had the opportunity to present an oral communication, titled “Unusual Presentation of Intracerebral Hemorrhage: A Report From Mali.”

Teaching Courses

The Teaching Courses focused on practical skills and knowledge essential for neurologists in the region.

Sessions included:

  • Neuropathies, clinical neurological examination, and EMG
  • Practical approaches in resource-constrained environments to autoimmune encephalopathies, HIV-related CNS infections, status epilepticus, and stroke.
  • Guidance on writing a scientific article, research project, leadership, and networking

Students came away from the courses with improved proficiency in conducting comprehensive clinical neurological examinations and using EMG for diagnosing neuropathies. We also gained practical approaches for managing critical neurological conditions in resource-constrained environments, such as utoimmune encephalopathies, HIV-related CNS infections, status epilepticus, and stroke. Finally, we received guidance on writing scientific articles and research projects, which is crucial for contributing to the body of neurological research.

Networking and Collaborations

The congress provided an excellent platform for networking with neurologists from around the world. I had the opportunity to meet and interact with leading experts, including:

Prof. Amadou Gallo Diop, Prof. Osheik Seidi, Prof. Riadh Gouider, Prof. Wolfgang Grisold, and many others.

Acknowledgments

Attending the joint congress of the AFAN and the ASN was an invaluable experience. It significantly enhanced my knowledge and skills, provided opportunities for networking and collaboration, and inspired new ideas for future research and clinical practice.

I would like to extend my sincere gratitude to the World Federation of Neurology for the travel grant, which made this enriching experience possible, to the organizers of the congress, and to all of the professors and colleagues I had the pleasure of meeting and learning from during this conference.


Carlos Othon Guelngar

Carlos Othon Guelngar

It was a great privilege for me to participate in the Fourth Congress of the African Academy of Neurology (AFAN), held in conjunction with the Fifth Congress of the Association Senegalese of Neurology (ASN).

The meeting featured an exciting mix of eminent speakers from English- and French-speaking Africa, as well as from Europe and the U.S.

During the meetings, I had the opportunity to present my work on gait disorders revealing a probable sporadic form of Creutzfeldt-Jakob disease, which was diagnosed in the neurology department of the Center Hospitalier de Montluçon.

I also discussed the burden of neurological diseases in Africa. Sleep disorders, strokes, and headaches are real public health problems. The first days of the congress were rich in themes focusing on abnormal movements in neurological conditions. This was organized by the International Parkinson and Movement Disorder Society – African Section (MDS-AS). At the end of the post-congress session, we also enjoyed presentations on neurophysiology, followed by a visit to the MDS neurophysiology training center.

I would like to thank the World Federation of Neurology (WFN) for the Junior Traveling Fellowship that granted me this opportunity, which enabled me to travel, present my work, and forge relationships with our neurophysiological colleagues.

Thanks also to the organizers of the ASN and AFAN. •


Mahamadou Kotioumbe is a neurology resident from Mali. Carlos Othon Guelngar is a young neurologist from Chad.